Friday, February 20, 2015

Who is driving the infirmary bus?

This is my oldest daughter, Olivia, when she was 12.  She had just gotten her ears pierced in this picture for her birthday.  

Olivia has had health issues for what seems like her whole life.  But really aside from the fact that she was diagnosed with epilepsy at 4 years old, her chronic health issues seem to start in adolescence.  

She suffered from headaches and stomach issues pretty much off and on the whole time.  Even though she is smiling in these pictures, her life was consumed with not feeling well.  Throw a little teenage rebellion in there and those years were, well to say the least, difficult at best.

As her mom, I prayed desperately for wisdom and patience with her and for her.  

It was a time of surrendering control as a parent and mother to God because I really just had too.  What could I do?  Oh, don't get me wrong, I wasn't giving up or not doing my part.  I researched her ailments like crazy and revamped her diet to see if it would help, had her tested for allergies, took her to a chiropractor, and neurologist. But after I exhausted all I knew, I crumbled in a million pieces at the Lord's feet.  "Please show me Lord what to do next!"was what I prayed.  Most often God would grant me peace and patience to just be still and wait on Him.  Wait on Him to lead and me follow instead.

All of these people helped her in some way shape or form but no one seemed to be able to get to the root of her problems.  I learned more and more about health and lifestyle changes that helped prevent illness.  I studied alternative cures for colds, allergies, gut problems, and how chemicals can effect people through, cleaning agents, food additives and vaccines.

I feel like God has blessed us with a wealth of information through the web and so we rarely see general practitioners for colds or infections.  Using natural remedies we have cured our family of many issues that the normal person would deem a doctor visit necessary.

But Olivia's health issues seem to just evolve into more complex issues.  She would complain of feeling foggy brained or just plain ol' fatigued all the time. The chiropractor really helped her with her  daily headaches but she would still get headaches with fluorescent lighting in department stores or church.  She began wearing sunglasses inside places that had these lights to prevent a headache.  It actually worked even though she looked somewhat alarming with shades on inside! 

Her stomach still continued to give her problems and we discovered that gluten and dairy were not her only issues.  She is sensitive to all kind of pepper and chills, soy, all nuts, and beans if eaten too much can rip up her stomach.  She began having to evaluate every meal she ate.  Does this have gluten or maybe dairy in it?  Does it have any pepper in it?  Each year seemed to bring on new sensitivities and now she breaks out in hives when she eats certain fruits and can't breath when she eats corn.

I can't say I have always been so compassionate to her problems. I'd have to say that being in control and making things happen is my nature. I'm her mom and should look out for her as best I can, making sure she gets the kind of medical care necessary for her to live as normally as possible.  This is what I tell myself anyway and with that comes a sub-conscience stress.  If you live with the thoughts that you are the one who should be able to find her help so her problems can be fixed, you are just going to come up to a dead end because God has to be driving the infirmary bus. It is true that I'm her advocate and I will be forever.  But what if you don't know what else to do?  What if you have exhausted all options? What if you've tried your best only to be chasing a rabbit trail.  You turn to God is what you do.  That's what I do sometimes later that I'd like but eventually I get there.

 I'm ashamed to say, we've had many fights over her not feeling well.  Living with someone who feels bad more days than she doesn't wears me out.  I'm a "pick yourself up and move on" kind of person.  The phrase "buck up camper!" comes to mind often.  Olivia wears her emotions on her sleeve --kind of gal. You always know how she is feeling because her body language and facial expressions say it all.  She is my drama queen daughter.

So how do we get along?  Some days we just don't.  Some days I have to practice my compassionate mother role a little more than normal.  She is learning to persevere even when she feels like poop.  God is using it all.  I just wish we could learn these things another way.

Now Olivia is 19 and is having more problems than ever.  I guess you could say she has a movement disorder where she twitches or jerks the majority of the day. We've seen a neurologist and had an EEG where everything came back normal.  It was such a hard day because as we were going in to review her EEG results, she was counting on the doctor having a prescription for a medication that would make this all stop.  She is a certified EMT and wants to work.  She cannot even drive because it's not safe. Well, that day was hard because the neurologist did not offer us any hope.  He had no meds that would help her.

 I ask God why?  Some people would say that isn't respectful to ask him that question but I don't think He is offended.  I'm learning many things through all this so that's probably why.  I'm learning to long for heaven.  To hope in a perfect eternity not a perfect life here on earth.  This earth is cursed so there is sickness and disease.  Is Satan targeting my daughter?  Maybe, but God is allowing it.  We know that everything that God allows is for our good. It's for her refinement and mine is what I've been told.  It doesn't make it any easier to go through, though.  Sometimes what we know to be true doesn't match up with how we feel about it.

Recently Olivia has begun having seizures again.  She has been off meds for 7 years but now we hope for some to help her.  Her seizures are different than they used to be.  It's hard to believe that the neurologist found nothing in her brain that is amiss.  No reason at all for her to be having these symptoms.  He suggested we see a psychiatrist because he thinks it might all be stress related.  That's what doctors say when they don't know what else to say.  He told her to try and live as normal of a life as possible. How do you do that when your body is deteriorating little by little?

This experience with this neurologist has just added to the fact that I have no faith is conventional medicine.  Another dead end.  Another doctor who has no answers and doesn't bother looking at the rest of her body to see if something might be terribly wrong. That's the problem with specialists.  They only seem to have training in that specific area and nothing else.  Could she have an extreme vitamin deficiency that is effecting her brain activity.  They say B vitamins and the mineral magnesium are both vital to brain function.  But when I brought this up, he shook his head and told me there were no documented studies on this so it can't be.

We just finished sending Olivia to Colorado to see a doctor who is a trained M.D. but has invested his life into learning about functional medicine.  This term means that they believe the body all functions together.  That all your systems are related.  They believe in looking at all the bodily functions to see what is amiss and could be the cause of your symptoms.  So Olivia has been completing a series of tests along with lab work to see what they can find.  This doctor has called me twice in a week to discuss her case.  I was put on speaker phone for her 2 hour consult.  He discussed her issues with his colleagues this week and then called me to discuss a few things that they are suspicious of.  I am so thankful for doctors like this one!  I even have his e-mail and can ask questions or give him necessary information as I think of it.  This is the kind of care I'm looking for!

I'm also looking for a new neurologist since the Colorado doctor thinks we need a second opinion.  He believes there has to be a medication for what she is experiencing.  Neither one of us wants her on anti-seizure drugs but sometimes there is a place for it.  What has caused her to regress?  Something.  She hasn't just developed a "condition" where there is no cure.  How can you not have seizures for 7 years and then start having them out of the blue?  Our bodies are complex and that's why I'm so glad I've found a knowledgeable doctor who cares and will do the research it takes to try at least, to figure her out! We now have some hope.  It makes all the difference, really. 

Am I still trying to drive the infirmery bus?  Nope.  God is driving this one.  Dr. Mark actually asked me to pray for God to give him wisdom.  This makes me respect him all the more.  He is not promising me that he can cure Olivia.  He knows his place and that it is only the Lord who can give answers.  

Here is the website to the practice in Colorado in case you are at a dead end and have some seriously health issues. 


Kristin Lodi

Wednesday, February 4, 2015

Winter thoughts

God's creations are just so amazingly beautiful.  This is a picture of a female cardinal that we took in our very own backyard!  When I watch the birds so busy gathering food, flying here and there, I'm reminded of how God provides for them and promises to provide for us even more.  Why worry about a thing, when God is for you.  Nothing changes when we worry anyway.  The birds bless me in this way as they remind me of how God is our provider and cares for us even more.

It's been so cold here this winter in Texas.  I know I can't complain in comparison to other states who have even colder weather but the grey skies and freezing temps really are hard to live with day after day.  I've always loved all the seasons including winter.  I love the beauty of the snow and ice.  I love the sound of rain and the feel of being warm in a cozy house.  But this winter the continuous days with no sunshine and the ability to sit outside, has gotten me down.  I know some people who do get depressed in winter and I can finally relate a little I think.

I realized how melancholy I felt all winter when the sun finally came out.  It was so refreshing and wonderful that I sat outside even though it was really too cold to.  Spring was suddenly in the air and all our ducks and chickens were happily running around playing and looking for food, taking other times during the day to nap in the sun.  

It kind of felt like this picture of Levi hiding under his umbrella in the gloomy rain. Just like me, hiding in my house trying to stay warm and be productive during the daylight hours.  

And then when the sun came out, the umbrella was lifted and a smile broke out!
This is my 3 year old duckling, Levi.  My oldest daughter took this picture of him and I love it!

These are a few of our real ducks basking in the sunshine.  They are about 11 weeks old now.  So big, they have grown!  Their eyes are on the side of their heads so when you talk to them and they look at you they cock their head in funny ways to see you like the way this white one is doing.  We have named her Snowwhite.

We live next door to a beautiful pond that our neighbor owns.  Now that our ducks are older we are starting to herd them down to the pond each day to swim since our little kiddy plastic pool is way to small for them.  

These two are mates.  They are the same breed and I think two of the prettiest ones.  We named the whiter one, Raquel and the browner one is named Harley.  

This is Prince.  He is the biggest duck we have.  He is a Pekin duck and because he is so big he has a big waddle too.  It's funny to see him lead the pack or sometimes bring up the rear because he is pretty slow to get where he wants to go.

We have learned that when they go to the pond they are actually getting food from it as well. They have a type of sieve in their bills that filters out the dirt and sand so they can eat the minnows and tadpoles and other small bugs.  They love the mud and and seem to be drinking it but that isn't really true.

They also have oil glands on their bodies that help their feathers repel water so they never seem like they are wet.  They can completely dunk their whole body under water but come up dry!  They love to bathe and flap their wings to fluff up their feathers after getting wet.  We have feathers all over our yard because of this.  They jump in my kiddy pool and get as wet as they can and then they flap so hard, you think they will just lift off and fly away at any time.  But these breeds of ducks can't fly.

We are really enjoying our two black ones.  They are called Cayugas and are a beautiful, silky black color. When the sunlight hits them certain ways their feathers look green or purple.  I named one of them Beautiful but I can't really tell them apart.

This is Raquel again.  She is my favorite. 

Harley again.  He is looking right at ya!

Here they are all in a row just like the ducks in books look like.  They stick together, let me tell you!  If one gets stuck or left behind, all the others will go back for it.  It's really endearing to watch them stay together even though they represent 4 different breeds. They have grown up together so each other is all they've known. There isn't an independent one out of the whole bunch.  I love this about them.  Chickens go off on their own and don't seem to care too much where each other is hanging out.  Ducks on the other hand are much more attached to each other.  When I take them to the pond and they all are playing around in the water, when one decides it's time get out, then they all finish up and get out too.  All of a sudden, all 8 of them will be done in the water and ready to follow the leader!

I love the way they look against the green pasture!  Every time I take them to the pond, I with I had my camera to capture the beauty.  They now know how to come home all by themselves after I take them down there.  This morning it was pretty cold so Micah and I stayed about 20 minutes.  They were having such a good time in the water and didn't look like they were going to be done anytime soon so we just left them down there.  They came home a few minutes later all together without loosing a single member of their family!

I'll end this post with another picture of my youngest duckling. 

Our own family is sort of like a duck family, I'm discovering.  We all need our time alone and sometimes go off with friends for a bit, but it's hard to stay away from each other for long.  We inevitably gather again to be together and enjoy each others company, sharing our days experiences.  Rich is our leader and where he leads, we follow.  Sometimes other members of our family voice their desires or concerns and unconsciously take a lead where we all follow to show our support.

Yes, I'm learning quite a bit about love and care by observing our ducks.  Gods creatures are indeed, beautiful in many ways.

Kristin Lodi